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    Please use this identifier to cite or link to this item: http://ir.taitheo.org.tw:8080/ir/handle/987654321/6062


    Title: 教會如何成為 妥瑞氏症孩童家庭的支持
    Authors: 蔡珮珺
    Keywords: 妥瑞
    合併症
    特殊兒童
    支持團體
    教牧關顧
    Tourette Syndrome
    Comorbidity
    children with special needs
    support group
    pastoral care
    Date: 2015
    Issue Date: 2015-08-20T04:06:05Z (UTC)
    Publisher: 台灣神學院
    Abstract: 本論文以家有妥瑞兒的基督徒家長為研究對象透過深度的訪談與資料 分析,來瞭解特殊兒家長們的心情和處境,並且探討其在信仰靈性上的需求
    ,進而討論教會面對家有特殊身心症病童的會友、或是社區中這樣的家庭, 應該要如何牧養、且成為他們的支持力量。
    本研究經以半結構式的訪談大綱深入訪談三位有基督教信仰背景的妥 瑞兒家長,發現了:「發現新朋友」、「天下父母心」、「醫生怎麼說」、
    「上學行不行」、「教會在哪裡」、「我們這一家」等六大主題。 最後,研究者針對研究結果中受訪者的處境、與其對教會的期待,提出
    了幾項建議,並且以妥瑞兒家長為對象(不限基督徒)、設計了一份為期十 二週的支持團體行動方案,希望能夠提供教會參考:如何以實際的行動來幫 助妥瑞兒家長們走出孩子病症的失落與挫折,藉由團體中成員們彼此地接納 與支持,能夠重拾希望。

    The purpose of this thesis is to explore the emotional state and challenges of the parents of children with Tourette syndrome. It uses in depth interviews with parents of special needs children along with data analysis. This thesis also studies their particular spiritual needs and how the church can address special needs families in the community and provide pastoral care for their support.


    The thesis uses semi-structured, extended interviews with three Christian parents of children with Tourette’s. Six major identified topics included: making new friends, parental love, medical advice, school suitability, the role of the church, and family life.


    Finally, the thesis makes some recommendations for parents in this situation and offers advice for the church. The author proposes a 12-week consultative support group program for all of the parents in the church who have children with Tourette’s. The hope is that the program can help the church to provide more efficient care for these families as they deal with a sense of loss and many frustrations, and also may help them regain a sense of normalcy and new hope through group members’ acceptance and support for each other.

    指導教授:錢玉芬
    Appears in Collections:[台灣神學院] 基督教關顧與協談碩士
    [2.基督教關顧與協談碩士 (CCC)] 畢業論文/個案研究報告

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